A.P. IT Minister Nara Lokesh steps in to save infant with a rare disorder
India

A.P. IT Minister Nara Lokesh steps in to save infant with a rare disorder

The Hindu 18 April 2026, 08:20 PM by InkBrief News Desk
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A one-year-old girl from Veldurthi in Kurnool district has been diagnosed with Spinal Muscular Atrophy (SMA Type-1), a life-threatening genetic disorder. A funding gap of ₹6 crore was bridged to facilitate a one-time gene therapy injection, Zolgensma, which costs nearly ₹16 crore. The girl's life was saved due to a combination of public support, medical intervention, and timely assistance.
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